PRO-ACE

Pooled Resource Open-Access Clinical Research ALS

The PRO-ACE platform harmonizes, de-identifies, aggregates, and stores clinical research data for secondary analyses.  The PRO-ACE dataset contains data collected from ERB/IRB approved observational studies, retrospective clinical assessments, population registries and other clinical datasets.  Data Contributors with pre-determined contribution levels become PRO-ACE Consortium members with benefits ranging from first-access rights to new data to securing authorship to papers. 

 

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